I feel like we've been running a marathon (not that I've actually done that :) ). I just wanted to update on what's happened to Avery.
Last Thursday she was discharged home. That was great and great to be home. Honestly, taking care of Avery at home was more challenging than I thought. On Friday and more so on Saturday, she was laboring more with her breathing, stridor got louder, she looked dusky, lethargic, feedings went down and sweaty. Then on Sunday, the home nurse called to check on us and we decided to take her to the ER at St. V's in Toledo. We saw several doctors and residents that we know who were kind enough to stop by and check in on us. Thanks.
She stayed in the PICU til this afternoon and was transferred back up to U of M in Ann Arbor. Ay, we just left. The only cool thing about this was my first ride in a helicopter, as I held Avery.
Avery is back on the General Care area and roommates with my friend, Maria (from the Dominican Rep.).
The Ron Mac was full and Maria kindly offered the other bed in her room for me to crash on, but miraculously when Eric brought some things up for me tonight, the manager had an open room for me. :)
Avery's trouble is her vocal cord and the respiratory and reflux issues with that. Half is still paralyzed and that allows stuff to pass when it shouldn't. Yesterday, last night and most of today, Avery was sooo fussy. She would just cry and cry. She finally settled down at 10 pm tonight. I'm still not sure what was the problem (too much stimulation, iv that was coming out, irritated trachea/esophagus, sensed my stress). The iv that was in her hand from Toledo did come out and they ended up putting in a iv on her head. That just looks worse than it feels I'm sure, it's just hard to see. With the protective thing covering the iv, she looks like a half-princess-Leia.
That's the scoop here. We're tired but hopeful that things can be resolved with Avery's breathing.
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5 weeks ago
7 comments:
Sorry you are back in the hospital and that your few days at home were kind of rough. Hang in there!
We were wondering how you were doing. Thanks for updating during all the craziness. We hope things will resolve soon!
Oh, Renae. Your poor little babe. :( Thanks for the update, and hang in there. I'm sure Avery's progress is a slow and complicated process, but you will get there. Love you!
a helicopter ride...how totally exciting and a special memory!
I'm sorry you've had so much craziness the past few days! Avery is such a trooper...as are her parents! Hang in there, and know we are thinking of you!
p.s. I got to push Zachery at walking group today...he was an angel! Sam thought it was the best thing EVER to ride next to Zach in a double stroller!
oh my goodness! So sorry that you are going through all of this! I bet it's harder on you than on Avery!!! really exciting about the helicopter ride though- I am a little jealous about that! we are praying for you and that whole family! It was great to see Zachery this morning- he was laughing and smiling while he chased a robin around the playground!
Renae, You are in my thoughts and prayers. I talked to Somer tonight and she said this had happened...know you and your family are thought of and prayed for. That is exciting about the helicopter ride, Amelia got to go on one too...but alas I was not allowed to accompany her.
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